Vendors & Technologies

A blue sign with photos of children printed on it, with the text “Working to find a cure for the most common cause of combined deafness and blindness.

A blue sign with photos of children printed on it, with the text “Working to find a cure for the most common cause of combined deafness and blindness

 

Usher Syndrome Coalition

Usher syndrome is the most common genetic cause of combined deafness and blindness in the United States and is one of the leading genetic causes of hearing loss. The Usher Syndrome Coalition is working to raise awareness and accelerate research, while providing information and support to impacted individuals and families.

To learn more, please visit www.usher-syndrome.org

Usher Syndrome Registry

The Usher Syndrome Registry was created to bridge the gap between researchers and families. There is currently no cure for Usher syndrome. However, there is ongoing research–including a number of treatments nearing the clinical trial phase. By registering, people can learn about and volunteer to take part in this important research.

To learn more, please visit https://www.usher-registry.org/

 

 

 

 

 

Three women, all brunettes, sit in a circle with smiles on their faces. Two of them, Hayley and Christina, sit with their knees touching and their hands on each other’s knees, their left hands overlapping. A dark haired man, Hayley’s SSP, who has a beard, kneels, also smiling, behind Hayley with his hands on her back.

The ProTactile booth was very popular!

 

ProTactile

The ProTactile ASL booth always had  a crowd of visitors eager to learn more about this type of signing.
It was new, and it was exciting, and it was something nearly everyone at the expo wanted to take part in.

The Pro Tactile movement was founded by AJ Grande and Jelica Nuccio. The entire philosophy is one of empowerment for those in the DeafBlind community. According to Jelica: “The ProTactile philosophy is to support DeafBlind culture, language, interpersonal relationships, politics…”.

“DeafBlind people have a right to obtaining information about the world surrounding them in their own way—through touch—and to build on that experience in ProTactile communities….it’s about how the DeafBlind community as a whole can survive and thrive with everyone involved as one.”

ProTactile ASL has been created specifically for the DeafBlind, so that they can understand what is happening in the world around them and become a part of it.

Resources:

http://www.protactile.org

 

 

 

Jackie Ellington, a female lawyer with dark skin and glasses, is wearing a bright yellow suit jacket and a grey skirt. She sits in front of a table with a blue cloth that says “Federal Communications Commission.”iCanConnect

The National DeafBlind Equipment Distribution Program, iCanConnect, is a program established by the Federal Communications Commission to help those who are DeafBlind access equipment and training to stay connected with family, friends, and peers.

 

 

 

 

Karen A. Isham, a pale skinned woman with sandy, curly hair stands behind the APH display table, wearing glasses and a pale blue polo. Her arms are covered with tattoos.

The American Printing House for the Blind, (APH) provides products and services for people who are blind and visually impaired.

 

The American Printing House for the Blind (APH)

The American Printing House for the Blind is a company that provides products and services for people who are blind and visually impaired. Their mission is to promote independence of blind and visually impaired persons “by providing specialized materials, products, and services needed for education and life.” APH offers a wide variety of products and services.

To learn more, please visit www.aph.org